BARRY: I feel as if I'm disappointing
my parents if something is not going right of I'm having problems. They've always
been there whenever I had a problem, they've always been there to help me, and
see me through it. But I'm an adult now; I should be able to take care of it myself.
DAVID: For a parent to lose a child is much more devastating
than for a child to lose a parent. My fear was, how are my parents going to react
if I don't survive? That was always a big worry for me.
HALINA (therapist): We spend so many years of our
lives fighting to feel autonomous and separate, adult and mature. When an illness
strikes, there's a great temptation to become emotionally dependent on our parents
again. We have to fight that temptation in order not to lose our sense of adulthood
and maturity. We live in a culture that puts such emphasis on autonomy, independence,
and competence. This is a particularly sensitive issue for young men, reinforcing
their hesitation really to show their vulnerability to their parents.
DR. MICHAEL (medical oncologist): I've been treating
people with cancer for many years. I've noticed that even sincere, well-meaning
friends just don't have time to deal with the person who's sick. Also, your disease
is too much of a reminder that something could happen to them. That's why I so
often see young, intelligent, and vigorous patients who have great hopes and dreams,
yet are isolated. They are alone. Being young adults, they don't always have families
around them, husbands, wives, and children to support them.
BRAD: I had quite a few friends when I got sick, but
ended up with only two. The others disappeared.
CHLOE: I had to get over resentment at feeling let
down by friends who were not able to be there for me, and to grow with me. It's
a growing process for everyone, whether you're going through the cancer or you're
close to someone who's going through it. You have no choice but to grow.
LORI: When I was diagnosed with a brain tumor last
year I turned to my friends for support, like I always do. Most were great, but
one said she couldn't be a part of it and that she could only be around for the
good times. I was stunned when she said that-we were such good friend! Later she
apologized, and I realized that she said it when she was scared and ignorant.
LYNN: I had a friend who actually thought she was
helping me by telling me that I should stop thinking about how serious cancer
is. She was acting like it was an ingrown toenail. It was interesting to see how
some of my friends caused me a lot of grief and stress. There were also incredible
friends who really helped me.
ERIC: One of my biggest fears when I was diagnosed
with Hodgkin's disease was that I would go from being pretty popular and socially
active to being sort of on the sidelines, no longer included in social events,
estranged from my circle of friends because they would see me as weird and different
because of the cancer. However, their incredible presence in my life throughout
my cancer treatment made such a difference. They helped to normalize my life in
the midst of the craziness of this disease by including me in all the activities
and social get-togethers that were basic to my life.
ARIEL: My sister got breast cancer when she was thirty-two.
It just made me furious that while my sister was in the hospital having her breast
cut off, then barfing all night from chemotherapy, her supposed "best friend"
gets a boob job! I couldn't believe the insensitivity, that woman bragging about
her beautiful new boobs when my sister just had one cut off!
KERI: I think I tired to overcompensate. I realized
early on that most of my friends were not going to be able to deal with my cancer
because they had no way to relate to it. So I threw dinner parties and had people
over, even on days when I was having my chemotherapy, just to prove to them that
I was OK. I think it was a little extreme, but it helped because it made them
feel that I wasn't as bad off as they thought.
DESIREE: I had a lot of support in the beginning,
then a lot of it faded away. I think that when a friend gets cancer, people reflect
on death and their own mortality. For people my age, in their twenties, that's
a really hard subject. Most of my peers have not experienced the death of a friend
or family member; my cancer shoved death right into their faces. So some friends
disappeared. But others I never would have expected to come through were there
all the time.
JESSICA: As a young person who has survived cancer,
I've had to go through the school of life quickly, to learn all the lessons quickly.
I learned that it can be very difficult for friends and family to be supportive.
I think they get scared.
HALINA (therapist): Maybe people would not feel so
uncomfortable and scared of being there for the person with cancer if they realized
that they're not expected to have magic words that will make the person feel better.
It's not about what you say, it's how well you listen. It's about your ability
to bear, to tolerate the other person's pain, fear, and hope. It's about your
presence, not magic words.
SHANNON: I have a very good girlfriend who was
diagnosed with breast cancer five years ago. She had to have a breast removed,
but she made it. She has always been thankful to me for having been there for
her, but I'm the one who should thank her because she made me realize something.
We women have a tendency to complain about our hair, our weight, our hips, our
legs. Going through this experience with her, seeing her body changed in such
a way, made me realize that hey, my ten extra pounds are really nothing to complain
about. And when I'm due for a haircut, that's nothing to complain about, either.
She taught me to appreciate having my body and being healthy. She made me realize
how precious every day is, and how precious friendship is. I know that she felt
very saddened when people were uncomfortable around her. She could feel that people
were avoiding her simply because they didn't know what to say, not because they
didn't care. She never judged those people, but it made her sad. I treated her
as I did before she had cancer. We just talked together and cried together and
hoped together and feared together.
More excerpts...